SUNDAY,
MAY 5
7:30
AM — 9:00am
APA Past Officer's Breakfast
8:00am – 10:00am
Topic Symposium
5000 Inflammatory
Disorders of the Cardiovascular System
Chair: James Bristow,
University of California, San Francisco, CA
Inflammatory diseases of the
cardiovascular system remain an important cause of
morbidity and mortality in infants and children. While
we do not think of these as genetic diseases, the
application of powerful molecular genetic tools to these
diseases has begun bear fruit. This session will provide
an update on the pathogenesis of Kawasaki syndrome, the
importance of viral infection and persistence of viral
genomes in dilated cardiomyopathy and transplant
rejection, and the mechanism of autoimmunity in
congenital complete heart block.
Viral Myocarditis
Jeffrey A. Towbin, Baylor College of Medicine,
Houston, TX
The Immunopathogenesis of Cardiac Inflammation in
Kawasaki Disease
Anne H. Rowley, Northwestern University Medical
School, The Children's Memorial Hospital, Chicago, IL
Inflammatory Diseases of the Heart: Viruses and
Transplant Rejection
Neil E. Bowles, Baylor College of Medicine, Houston,
TX
Complete Congenital Heart Block: Functional and
Molecular Aspects
Mohamed Boutjdir, SUNY Health Science Center and VA
Medical Center at Brooklyn, NY
Sponsored Jointly with the Pediatric Infectious
Diseases Society
8:00am – 10:00am
Topic Symposium
5001 Measuring
and Improving Quality in Academic Medical Centers
Chair: Michael Apkon, Yale
University School of Medicine, New Haven, CT
Applying scientific approaches
to quality management presents an important leadership
challenge for Academic Medical Centers to enhance health
care delivery. This symposium will review new paradigms
with which to examine opportunities for measuring and
improving the process of care delivery. The symposium
will also consider areas of congruence as well as areas
of opposition between the educational and care-delivery
missions of Academic Medical Centers where
often-competing interests of research, clinical care,
and education create a particularly challenging
environment for quality management.
The Case for Quality
Michael Apkon, Yale University School of Medicine,
New Haven, CT
Measuring the Quality of Care
Rita Mangione-Smith, University of California, Los
Angeles, CA
Comparing Quality Across Institutions
Murray M. Pollack, Children's National Medical
Center, George Washington University School of Medicine,
Washington, DC
Pediatric Outcomes Measurement in Academic Medical
Centers
Jeffrey H. Silber, The Children's Hospital of
Philadelphia and the University of Pennsylvania School
of Medicine, Philadelphia, PA
Aligning the Missions of Providing Care and Educating
Physicians
Martha Radford, Yale University School of Medicine,
Yale New Haven Health System, New Haven, CT
Discussion
8:00am – 10:00am
LWPES Plenary Session
5005A LWPES
Plenary Session II
LWPES Presidential Lecture
Barbara M. Lippe
Robert Blizzard Lecture:
Puberty and Its Hormones: Neuroendocrine and Metabolic
Regulation
Nelly Mauras
8:00am – 10:00am
Platform Session
5050 Behavioral
Pediatrics II
Chairs: Robin L. Hansen and
Marsha D. Rappley
8:00am – 10:00am
Platform Session
5051 General
Pediatrics I
Chairs: Benjamin Gitterman and
Linda Diane Meloy
8:00am – 10:00am
Platform Session
5052 Genetic
Basis of Disease
Chair: Cynthia J. R. Curry
8:00am – 10:00am
Platform Session
5053 Hematology–Oncology
II
Chairs: Valerie P. Castle and
Donald H. Mahoney
Includes ASPHO Young
Investigator Award Lecture
8:00am
– 10:00am
Platform Session
5054 Neonatal
and Fetal Nutrition and Metabolism II
Chairs: Michael K. Georgieff
and Satish C. Kalhan
8:00am – 10:00am
Poster Symposium
5055 New
Topics in Childhood Immunization Delivery
Chairs: Lance Rodewald and
Judith S. Shaw
8:00am – 10:00am
Poster Symposium
5056 Perinatal
and Neonatal Infectious Diseases
Chairs: F. Sessions Cole and
Roger G. Faix
8:00am – 11:00am
Mini Course
5090 Adolescent
Medicine - Part II—Eating Disorders
Chairs: Donald E. Greydanus,
Michigan State University, Kalamazoo, MI and
This presentation will present
an overview of the research on the diagnosis,
assessment, and treatment (therapy: including
psychological and pharmacological; settings: inpatient,
day treatment, and outpatient) of adolescents with
eating disorders. A brief comparison of the diagnostic
criteria used by the American Psychiatric Association
and the World Health Organization will be presented and
discussed regarding the relevance to research design and
diagnosis. Special issues (such as research design,
subject selection, research settings, geographical
location, definitions, terminology, race and culture,
managed care, and reimbursement) and their impact on our
current knowledge base and on treatment choices will be
addressed. Recommendations for future directions in
assessment, treatment, and research will be offered.
Overview
Donald E. Greydanus, Michigan State University
College of Human Medicine, Kalamazoo, MI
Diagnostic Criteria: American Psychiatric
Association, World Health Organization, Implications for
Diagnosing Adolescents
Helen D. Pratt, Michigan State University, Center
for Medical Studies, Kalamazoo, MI
Special Issues: Subject Selection: Gender, Race,
Ethnicity, Sexual Orientation
Helen D. Pratt, Michigan State University, Center
for Medical Studies, Kalamazoo, MI
Research Design: Research/Treatment Settings,
Inpatient, Day Treatment, Outpatient, Hospital,
Clinic,
Community, Geographical Location, Definitions,
Disorders, Recovery
Helen D. Pratt, Michigan State University, Center
for Medical Studies, Kalamazoo, MI
Break
Treatment Interventions: Psychological, Psycho-pharmacologic
Helen D. Pratt, Michigan State University, Center
for Medical Studies, Kalamazoo, MI
Treatment Outcomes
Helen D. Pratt, Michigan State University, Center
for Medical Studies, Kalamazoo, MI
Recommendations for Future Research
Helen D. Pratt, Michigan State University, Center
for Medical Studies, Kalamazoo, MI
Discussion
8:00am
– 11:00am
Workshops
5100 Beyond
P Values: Inference in Clinical Research
Observational research studies
have become increasingly complex both in design and
analysis. The results of observational research studies
can be driven by properties other than chance or direct
causation. These factors not only drive the p values of
the results, they also change the appropriate
interpretation.
In the first half of this workshop, we will formally
define confounding, effect modification, intermediate
variables, internal vs external generalizability,
selection bias, and differential/nondifferential
information bias. In the second half, we will use a
case-based approach to illustrate examples of studies in
which results are driven by these factors and compare
differences in the appropriate interpretation in their
presence and absence. Participants will be invited to
interpret a given study and its data analysis then
encouraged to consider factors presented in the first
half of the workshop. Time permitting, we will
specifically illustrate examples of effect modification
vs confounding, intermediate variables vs confounding,
selection bias in case control studies vs cohort
studies, restriction vs selection bias, power in
negative studies, analysis of infectious disease
clusters, and the role of measurement error in
determining effect estimates. While an understanding of
basic study design (i.e., case control vs cohort) will
be necessary, minimal math skills will be needed.
R. O. Wright, D. K. Shay, Department of Pediatrics,
Brown Medical School, Providence, RI and Centers for
Disease Control, Atlanta GA
5101 Beyond
Smoking Outside: The Pediatrician’s Role in Helping
Families To Stop Smoking
The effects of parental smoking on
children’s health are well known, yet pediatricians
are often hesitant to actively assist parents to quit
smoking. Recent research has identified methods and
windows of opportunity that can be most effectively
utilized by pediatricians. Brief interventions in the
context of pediatric primary care have been shown to
produce parental quit rates of 5–8%. Pediatricians
cite lack of confidence in their ability to advise
parents about how to stop, lack of true physician–patient
relationship with the parent, concern that parents will
receive the suggestions negatively, and lack of time as
reasons to not intervene with parents who smoke.
Didactic content of this workshop includes the
biology of nicotine addiction and withdrawal, behavioral
and pharmacological treatment for nicotine addiction,
and the AHRQ Clinical Practice Guidelines for Smoking
Cessation. Effective strategies for implementing the
AHRQ guidelines in pediatric offices will be discussed.
There will be an opportunity to role-play smoking
cessation interventions for parents. The faculty will
share examples of practical office systems changes based
on their experience in training pediatricians and staff
to address parental tobacco use.
J. Groner, G. French, D. Moss, T. Syed, Departments
of Pediatrics, The Ohio State University, Columbus, OH
and University of Pittsburgh, Pittsburgh, PA
5102 Choosing
and Using Health Status Instruments
The development of measurement
tools that obtain the perspectives of children and
parents about child health is the most concrete example
of the recent progress of pediatric outcomes research.
Although several generic and disease-specific health
status tools for children and adolescents are now
available for use in clinical and outcomes research, it
is not always obvious which measurement tool to use in a
given research project. Moreover, there are important
methodologic considerations inherent in obtaining
children’s and adolescents’ self-reports on their
health.
The purpose of this workshop is to provide
participants with the knowledge and skills needed to
select and use health status instruments in child health
research. The workshop leaders will present a framework
for choosing the right health status instrument for a
specific application. Topics covered will include:
conceptual models; psychometric issues unique to
obtaining child and teen self-reports; measurement
reliability and validity; sensitivity to developmental
differences and changes in health; child vs parent proxy
response; instrument scoring; and, an approach for
defining measurement requirements. This framework will
be used during a hands-on, interactive session during
which participants will review and evaluate a variety of
actual disease-specific and generic health status
instruments.
C. B. Forrest and A. Riley, Department of Health
Policy and Management, Bloomberg School of Public
Health, Johns Hopkins University, Baltimore, MD
5103 Developing
a Curriculum for Fellowship Research Education: Planning
the Process
Fellowship programs in Academic
General Pediatrics and other related disciplines are
educating the future leaders in child health research.
Educational experiences in research, as well as
resources for research education, are variable in these
fellowship programs. In order to support fellowship
programs in their research education activities, this
workshop will convene fellowship directors, child health
researchers, and pediatric educators with the following
objectives: (1) Review the present state of knowledge of
fellowship curricula and their evaluation: (2) Review
existing models of fellowship research curricula,
including structure (coursework, research experiences,
mentorship opportunities), content, and evaluation; (3)
Discuss the spectrum of fellowship research education,
from minimum recommendations for all fellowship programs
to centers of excellence; (4) Develop a
"working" outline of a fellowship research
curriculum; (5) Institute and organize working groups to
take the products of this workshop and develop a
proposed curriculum during the next year; (6) Consider
the role of APA and sister organizations in fellowship
research training, including disseminating fellowship
research curricular guidelines, evaluating outcomes, and
sponsoring research mini-courses to supplement research
education within the fellowship programs. We welcome the
involvement of pediatric educators skilled in curricular
development and evaluation both before and during the
workshop.
B. P. Dreyer and D. J. Schonfeld, New York
University, New York, NY, and Yale University, New
Haven, CT (for the Research Committee)
Sponsored Jointly with the APA Research Committee
5104 Developmental
and Cultural Concepts: Children's and Parents'
Understanding of Illness
Numerous studies document
systematic developmental stages and cultural differences
in how children and adults understand physical and
psychological conditions. These developmental and
cultural differences are related to families’ health
seeking behaviors and coping strategies. They are
important to the recognition of symptoms, the
understanding of diagnoses, and compliance with
appropriate treatments.
In this interactive workshop, a panel of
investigators will briefly present research findings
from developmental psychology and pediatrics and medical
anthropology that inform clinical work with children and
adults across ages and cultural contexts. The panel will
include, in addition to ourselves, David Schonfeld, Lee
Pachter and Pradeep Gidwani whose research addresses
AIDS, cancer, asthma and ADHD among other conditions.
Videotaped interviews and role-plays will highlight key
concepts and guide a discussion of methods to improve
communications with families by integrating this body of
research into clinical interactions. Break-out groups,
led by each member of panel, will follow to discuss the
clinical implications of this research and to develop
ideas for future research.
J. M. McMenamy, E. C. Perrin, Center for Children
with Special Needs, Department of Pediatrics, Tufts
University/New England Medical Center, Boston, MA
5105 Portfolios
for Residency Education: Fostering Self-Directed
Learning and Evaluating Competencies
This workshop is designed for
Pediatric Faculty to explore the usefulness of Resident
portfolios. Learning portfolios keep in step with two
increasingly prominent trends in medical education:
fostering self-directed learning and evaluating
competencies. We will demonstrate ways our programs are
using portfolios: for a PL1 Health & Development
curriculum, a PL2 Behavioral-Developmental rotation, a
Neonatal Intensive care rotation and a Medical
Informatics rotation. Participants using this
methodology are invited to bring samples of their own
institution's efforts.
Objectives for participants include:
- Identifying facets of this methodology that
promote learning
- Identifying potential difficulties with
implementation of use of portfolios
- Identifying aspects of residency education for
which portfolios might or might not be useful
- Identifying how use of portfolios might help
faculty better evaluate competencies as outlined by
the ACGME—especially for the constructs of Medical
Knowledge, Practice-based Learning and Improvement,
System-based Practice and Professionalism (i.e.,
those areas which are often more difficult to assess
than Patient Care)
Components of the portfolios which will be discussed
include: purposes, design of Learning Tasks, evaluation
methods, strategies for obtaining resident and faculty
participation. Participants will then have an
opportunity to identify for their own program an area in
which they might trial the use of portfolios. They will
have time in this workshop to develop initial steps that
can then be further developed on return to their home
institution. We anticipate this being a very
"working" workshop, with participants creating
a product that can be readily adapted for
implementation.
V. N. Niebuhr, P. S. Beach, S. Keeney, A. Spooner.
Dept. of Pediatrics, Univ. of Texas Medical Branch,
Galveston, TX, and Dept. of Pediatrics, Univ. of
Tennessee at Memphis, Memphis, TN
5106 Reducing
Medication Errors – Time To Take Action
Each year there are thousands of
injuries and deaths in U.S. hospitals from medication
errors. These blunders cost millions of dollars and
result in loss of public confidence in our health care
system. Medication errors are the second most frequent
and the second most expensive event causing liability
claims. Errant orders on the inpatient unit and
incorrect prescriptions in the ED and clinics are
common. Physicians, nurses, pharmacists, students,
manufacturers and even caregivers all share
responsibility. Many errors are preventable.
This workshop will focus on common sources of medical
errors and ways to prevent them. Workshop leaders will
discuss specific issues including:
- Root cause analysis looking at systems issues
rather than individuals
- Moving toward non-punitive approaches to reporting
errors
- Developing teaching programs for housestaff and
students
- The role of the pharmacist—how can they help?
- New technology—are computer systems useful? Are
the programs affordable?
- Creating multidisciplinary medication use process
improvement teams
- Approaching the family after a medical error—legal
and ethical implications
Participants will be asked to share their ideas and
experiences. It is hoped that participants will be able
to develop a multidisciplinary program in their own
institutions to reduce and manage medical errors.
S. Selbst, S. Levine, A.I. duPont Hospital for
Children, * Wilmington, DE, and J. Fein, J. Gould, M.
Friedman, C. Mull, Children’s Hospital of
Philadelphia, Philadelphia, PA
5107 Teaching
Ethics from Daily Patient Care
People often stereotype ethics as
about end-of-life or as requiring an ethics committee.
But everyday pediatric practice is rich with issues for
teaching ethics.
This workshop will focus on identifying the ethical
issues that surround pediatricians' in their routine
practice and how to teach ethics from these examples.
Participants will enhance their skills in ethical
analysis, using the "Tools of the Trade"
assembled by Dr. Burck, an ethicist at RPSLMC. The
workshop will model the constructivist interactive
case-based process that has been used at RPSLMC to
develop the ethics noon conference curriculum. For each
topic, the workshop will begin with a warm-up exercise,
then small group discussion of cases, large group review
of reports from small groups and closing summary of key
ethics concepts and skills used. The group will go
through this process multiple times in order to deepen
the conceptualization and educational approach each
time. Workshop participants will be able to take home
the cases that have been used at RPSLMC and a summary of
the "Tools of the Trade."
At workshop end, participants should more confidently
identify ethical issues in daily practice, teach from
them, and generalize to difficult issues, like
end-of-life.
C. Gaebler and R. Burck, Department of Pediatrics and
Program in Ethics, Rush-Presbyterian-St. Luke's Medical
Center, Chicago, IL
5108 Training
Residents To Serve the Underserved: A Case-Based
Approach
As part of a national effort
funded by the APA and MCHB, a set of "teaching
modules" on topics related to underserved
populations was created with the help of a national
advisory board. Each module is centered on a case and
includes a "tutor guide", audiovisual and
other materials. The goal of this workshop is to provide
faculty with the tools to effectively teach residents
about underserved populations. Participants will also
learn more about case-based teaching by observing and
participating in demonstrations of these tools.
The workshop will consist of three parts: (1) A brief
presentation on the development of the teaching
materials, followed by an interactive discussion of
case-based teaching methods. (2) A breakout session
where each group will participate in a mock clinic
conference. Each facilitator will model the use of a
different case. (3) The entire group will reconvene for
a discussion of the barriers to using this curriculum at
individual institutions and strategies for overcoming
those barriers. Methods for improving the curriculum and
updating material will be actively solicited.
Copies of all 8 completed modules (12 more are
currently in production) will be distributed.
Participants are invited to contribute to the ongoing
research on the materials effectiveness. These cases
will also be available through the web for distribution
at www.servingtheunderserved.org.
R. C. Samuels, D. M. Keller, W. Risko, W. G. Bithoney,
Children’s Hospital, Boston, MA, University of
Massachusetts Medical School, Worchester MA, and St.
Joseph’s Children's Hospital, Patterson, NJ
8:00am – 11:00 AM
Special Interest Groups
5109 AIDS/HIV
Chair: Nancy Hutton, nhutton@welchlink.welch.jhu.edu
5110 Complementary
and Alternative Pediatrics
The Complementary and Alternative Pediatrics SIG will present two speakers, followed by planning for the creation of a web-based pediatric database / curriculum in Integrative Pediatrics. Sharon McDonough-Means, M.D., one of the first two graduates of the Integrative Pediatrics Fellowship of the University of
Arizona, will speak on “An Integrative Approach to Attention Deficit Hyperactivity Disorder Treatment: Evidence – Based Strategies.” The next speaker will be the SIG’s co-leader, Sharon Riesen, M.D., Associate Professor of Pediatrics at Loma Linda University. She will speak about “Glyconutrients in the Treatment of Asthma: A Spoonful of Sugar is the Medicine Going Down.” The third hour of the SIG will be used to consider the creation of an Integrative Pediatric Database and Curriculum accessible via the Internet. Please join us for this exploration of alternative approaches to some common pediatric problems and the ensuing discussion and planning period.
Cochairs: Scott Faber, sfaber@mercy.pmhs.org,
and Sharon Riesen, sriesen@ahs.llumc.edu
5111 Emergency
Medicine
The Pediatric Emergency Medicine
SIG meeting is planning an excellent meeting in
Baltimore this year. Our first topic for discussion will
be the "management of febrile children in the post
pneumococcal vaccine era: Should we change our
practice." Each member of the panel of experts will
give a brief presentation followed by a panel
discussion. In the second part of the meeting we will,
again, have a formal presentation on "teaching
cost-effective medicine in the emergency
department." The presentations and discussion of
each topic will be one hour and fifteen minutes long.
Pediatric Emergency Medicine fellows and junior faculty
will have the opportunity to present their research
posters during the break between the two discussion
topics.
Chair: Halim Hennes, hhennes@post.its.mcw.edu
5112 Medical
Informatics
The APA Informatics SIG, now in
its third year, is a community for researchers
interested in the field of pediatric (medical)
informatics. Each year, our members hold workshops and
present our work in various sessions during the Annual
Meeting.
We have exciting plans for the 2002 PAS meeting in
Baltimore, Maryland. We are planning to invite an expert
(expect a pleasant surprise, but we are unable to say
more at this time...) on medical informatics project
evaluation to help teach us ways we can improve this
component of our studies. In addition, we will spend
time in a roundtable discussion about implementing EMRs:
challenges, successes and failures. Please come!
Chair: Kevin Johnson, Kjohnson@jhmi.edu
5113 Medical
Student Education
The Medical Student Education SIG
is dedicated to being a home for all people who are
interested in medical education. As such, its activities
are relevant to a wide variety of people. Education, and
its close cousin, effective communication are critical
areas for those who identify with Faculty Development,
Injury Prevention, Emergency Medicine, Residency
Training, Continuity Clinic, and Informatics to name a
representative few.
The goals of the SIG were and are to:
- Identify and influence the agenda of medical
education and
- To provide a home base for anyone who sees medical
education as critical.
Our unique charge is to enlighten the education
community in education, through the eyes of the student.
As usual, this year’s program will include
camaraderie, creativity, warmth and food to nourish all
who attend. We plan to continue the tradition of O. J.
Sahler, Rich Sarkin and Helen Loeser—past SIG chairs—in
this mission.
Title: Bringing Competencies to Life
Target Audience: Anyone involved in medical student,
resident and continuing education
This year’s SIG will build on last year’s
presentation on competency-based evaluation.
The goal this year is to enhance our approach to
facilitating learning by both defining and
operationalizing competencies in core areas as defined
by the AAMC and ACGME. These organizations have defined
a number of "core competencies," which serve
as our guide to medical education.
The program will include:
- A brief overview of competency based education.
- Review of ACGME and AAMC core competencies.
- Group work to define competencies and describe
methods for facilitating the learning of these
competencies. We will focus on 1–3 of the
"core areas". Some of these are:
- Professionalism/Humanism
- Informatics
- Patient Care (Including History Taking/ Physical
Examination/ Decision Making
- Communication Skills (Patient Education/
Behavior Change)
- Health Care Systems (Access/Advocacy/Community
Health)
- Cultural Considerations
- Basic Science Applications (Genetics)
- Review of evaluation checklists and other
feedback/evaluation tools, such as Brief Structured
Observation. This will include sharing of ideas on
how to implement these tools into the day to day
clinical work.
Chair: Steve Miller, szm1@columbia.edu
5114 Pain
The Special Interest Group on Pain
in Children focuses each year on an emerging area in the
management of children's pain. Topics at previous
meetings have included long-term consequences of
inadequately treated pain and development of
institutional approaches to promote pain management. The
focus this year will be on minimizing injection pain. It
is particularly relevant given immunization schedules
which cluster multiple injections at the same visit. The
session will attempt to address behavioral and
pharmacological approaches that decrease injection pain
as well as strategies for implementing such approaches
in busy ambulatory settings.
Chair: Neil Schechter, nschecht@stfranciscare.org
5115 Practice-Based
Research Networks
Chair: Richard Pan, r.pan@ucdmc.ucdavis.edu
5116 Pediatric
Resident
This will be our first meeting of the newly formed Pediatric Resident Special Interest Group! Our group will provide residents and fellows with a much-needed forum for discussion, support, advice, mentorship, and varied educational experiences. By sharing different approaches and solutions to key issues in training programs, members of the Pediatric Resident SIG will be able to:
- Aid in the transition from medical student to resident
- Aid in the transition from resident to fellow
- Learn how to handle the stress of long work hours and sleep deprivation
- Receive financial advice about loan repayment and retirement funds
- Learn about fellowship opportunities and the application process
- Learn about different career choices
- Learn effective teaching techniques
- Learn about end of life care issues
- Learn to recognize and solve ethical dilemmas
- Network with other residents interested in areas such as advocacy or research.
Our first meeting will include a
workshop/discussion on how to be an effective teacher and
student during morning rounds, ethical issues facing
Pediatric Residents, and an interactive talk by Richard
Behrman, MD (editor of Nelson's Pediatrics) on
pediatric residency education.
We also will dialogue with several Pediatric
Residency Program Directors and finally, we will discuss
amongst ourselves those issues in residency we feel to be
most pressing and important.
Chairs: Joshua
Schiffman, MD, Pediatric
Resident, Stanford University School of Medicine, joshua.schiffman@stanford.edu
and Rebecca Ryder, MD, Pediatric Resident, University of
Florida College of Medicine, rryder@ufl.edu
9:00am – 11:00am
ASPN Symposium
5120A Molecular
Determinants and Clinical Implications of Renal Tubular
(Dys)Function
Chairs: William Schnaper,
Northwestern University, Chicago, IL, and Aaron
Friedman, University of Wisconsin, Madison, WI
Nephrogenic Diabetes Insipidus:
From the Ship Hopewell to Misfolded Proteins
Daniel G. Bichet, University of Montreal, Canada
Renal Tubular Acidosis — Moving a Step Forward
Uri S. Alon, University of Missouri, Kansas, MO
Clinical, Molecular, and Therapeutic Aspects of
Nephropathic Cystinosis and Its Variants
William A. Gahl, National Institutes of Health,
Bethesda, MD
Renal Salt Handling: Lessons from the Clinic
Lisa M. Guay-Woodford, University of Alabama at
Birmingham, Birmingham AL
10:00
AM — 3:00 PM
Commercial Exhibits Open and Posters Available for
Viewing
Available
for Viewing: 10:00am – 3:00pm
Author Attendance: 11:45am – 1:45pm
10:15am – 11:45am
LWPES Professional and Clinical Affairs Program
5140A Reimbursement
Issues in Diabetes Care
Chairs: Organizers: Georganna
Klingensmith, Barbara Davis Center for Childhood
Diabetes, Denver, CO; and Jay Cohen, The Endocrine
Clinic, PC, Memphis, TN
Cost and Reimbursement Data
for Diabetes Clinic Services
Gail E. Richards
Logistics of Contracting, and Outcomes — Both
Financial and Medical
William Tamborlane, Yale University School of
Medicine, New Haven, CT
Logistics and Contracting, and Outcomes — Both
Financial and Medical
Karen Rubin, University of Connecticut, Farmington,
CT
Setting Up Outpatient Diabetes Education Programs
Denis Danneman, Hospital for Sick Children, Toronto,
Canada
10:15am – 11:45am
Award
5190 APS
Presidential Plenary, Howland Award & (11:15 AM) St.
Geme Award
APS Presidential Address
Judith G. Hall, University of
British Columbia, Vancouver, Canada
APS Howland Award Lecture
Howard A. Pearson
Joseph W. St. Geme, Jr. Leadership Award
Walter W. Tunnessen,
11:45am – 1:45pm
Poster Session II (Author Attended)
and HRSA Posters
Available
for Viewing: 10:00am – 3:00pm
Author Attendance: 11:45am – 1:45pm
Endocrinology
– Diabetes: Prevalence and
Epidemiology
– Diabetes: Types 1 and 2
– Insulin Sensitivity
– Thyroid
General Pediatrics and Preventive Pediatrics
– Alternative Medicine
– Asthma
– Child Abuse
– Health Care Insurance
– Immunizations
– Infectious Disease
– Injury
– Literacy
– Miscellaneous
– Parent Education
– Race/Ethnicity
– Research Methodology
– Well Child Care/Health Supervision
Hematology and Oncology
– Cellular Biology: Cytokines
– Hematology: Anemia and Bone Marrow Failure
– Hematology: Hemostasis and Thrombosis
– Oncology: Neuro-oncology
– Oncology: Solid Tumors
– Stem Cell Transplantation: Clinical and Biologic
Infectious Diseases
– General
– HIV
– Respiratory Syncytial Virus
– Viral Diseases
Neonatology
– Gastrointestinal/Metabolism
– Hematology
– Nutrition: Enteral
– Nutrition: Parenteral
Nephrology
– Acute Renal Failure
– Chronic Renal Failure
– Hypertension
– Glomerular Disorders
5206 HRSA
Poster Session
12:00pm – 1:30 PM
Alliance Society
5250A Directors
of Research in Pediatrics
Supported by an educational grant from the the Carol
Ann Craumer Endowment for Pediatric Research at
Children's Hospital of Pittsburgh
12:00pm – 1:30 PM
Alliance Club
5300A Perinatal
Brain Club
The Use of Cranial Ultrasound
and Advanced Magnetic Resonance Imaging Techniques in
the Understanding and Detection of Neonatal Brain Injury
Linda S. de Vries, Wilhelmina
Children's Hospital, UMCU, The Netherlands; Petra S.
Huppi, Children's Hospital, University of Geneva,
Geneva, Switzerland; and Terrie E. Inder
12:00
PM – 2:00 PM
APA Luncheons
Region
Chairs
SIG Chairs
Fellows
1:45pm
– 2:30pm
LWPES Fellows and Junior Faculty Session
5400A Career
Development
Puberty and Its Hormones:
Neuroendocrine and Metabolic Regulation
Nelly Mauras
1:45pm – 2:30pm
State of the Art Plenary
5590 Children
as Victims of Bioterrorism: Protecting the Fragile Host
Chairs: Phyllis Dennery,
Stanford University School of Medicine, Palo Alto, CA
and Tina Lee Cheng, Johns Hopkins University School of
Medicine, Baltimore, MD
With the recent world events
and new threats of biowarfare, what should pediatricians
know? Due to their size and physiology, children are at
higher risk of injury from bioterrorism. This session
will address the biology, clinical manifestations, and
possible preventive strategies for likely biowarfare
agents. The unique vulnerability of the child will be
addressed.
Overview
Phyllis A. Dennery, Stanford University School of
Medicine, Palo Alto, CA
Children as Victims of Bioterrorism: Protecting the
Fragile Host
Ralph D. Feigin, Baylor College of Medicine,
Houston, TX
Discussion
2:00pm
– 5:00pm
Workshops
5600 A
Curriculum for Disclosing Medical Errors: Responding to
the Joint Commission Imperative
Release of the Institute of
Medicine Report (1999) has increased public awareness of
the existence of errors in the practice of medicine. The
Joint Commission on Accreditation of Healthcare
Organizations (JCAHO) has issued a directive that
medical errors be disclosed to patients and families.
Healthcare organizations need strategies to ensure
compliance, yet many questions remain: What represents a
disclosable medical error? Is there a means of reaching
consensus among professionals and how does one share
with families in the most constructive ways possible?
This workshop will focus on a program developed at
Vanderbilt designed to help medical groups reach
consensus concerning what represents an error and
understand existing literature concerning the
consequences of disclosure. Using a case-based approach
participants will be afforded an opportunity to share
such sensitive information through role-play and
"audience lifeline" techniques. The program
will emphasize that there is no single correct approach
given the complexity of medicine and differences in
families and physicians. Participants will be encouraged
to use a "balance beam approach" in which
physicians (pediatricians) consider all possible
disclosure strategies ranging from limited to full
disclosure with assignment of responsibility and the
relative advantages and disadvantages of each approach.
Participants should be better equipped to share highly
sensitive information with families and adapt course
concepts into their own institutions.
G. B. Hickson, J. W. Pichert, J. Gigante, Vanderbilt
Children’s Hospital, Nashville, TN
5601 Creating
a Competency-Based Evaluation Portfolio
The paradigm shift to
competency-based medical education warrants a close
examination of methods of evaluation of clinical
competence. Through this workshop we propose to: 1)
demonstrate a number of tools available for evaluation
of medical students and residents and 2) discuss which
tools are most appropriate for evaluation of specific
competencies. Finally, we hope to create an evaluation
portfolio for a virtual resident in a competency-based
training program.
There will be a brief introduction to a variety of
possible assessment tools, such as the Brief Structured
Observation, the OSCE, 3600 evaluations, and
standardized histories and physicals. Participants will
then be assigned to one of six small groups, each group
representing one of the six ACGME Outcomes Project
competencies. Each group will be asked to identify those
tools most appropriate for evaluation of a number of
knowledge, skill and attitude benchmarks/performance
indicators within each competency. Based on feedback
from the groups, we will then create a competency-based
evaluation portfolio for a virtual resident.
C. Carraccio and R. Englander, University of
Maryland, Baltimore, MD
5602 Developing
Effective Resident as Teacher Programs
At teaching hospitals residents
universally serve as teachers and are essential to the
education of medical students and interns; however,
residents and faculty are often not assisted in
developing teaching skills. Two challenges exist: to
develop residents as teachers and to develop effective
teaching programs to teach them how to teach.
This interactive, hands-on workshop will provide the
participants with the opportunity to analyze three
Resident as Teacher programs that represent different
approaches to program development and teaching. Workshop
facilitators will use interactive teaching methods,
small and large group formats, and audience
participation to analyze how to design effective
resident teaching programs. In analyzing three different
approaches we will address curricular development,
implementation and evaluation.
Written materials will be provided that participants
can use in their own residency programs.
E. A. Rider, Dept of Pediatrics, Harvard Medical
School, Boston, MA, R. T. Sarkin, Dept of Pediatrics,
SUNY at Buffalo School of Medicine, Buffalo, NY, K.
Pituch, Dept of Pediatrics, Univ. of Michigan School of
Medicine, Ann Arbor, MI, and J. P. Hafler, Dept of
Pediatrics, Harvard Medical School, Boston, MA
5603 Developing
Faculty To Teach Child Advocacy
The Pediatric RRC now requires
that residents be prepared "for the role of
advocate for the health of children within the
community." Programs have addressed this
requirement through community block rotations,
longitudinal experiences, lectures, workshops and
service-learning experiences. A common problem, voiced
in the APA Advocacy Training SIG meetings, is lack of
preceptors to teach and model child advocacy within
their programs to reinforce the message that child
advocacy is part of good pediatric practice.
This workshop will allow participants to learn how to
promote the teaching of child advocacy by academic and
community preceptors in pediatric residency.
Participants will: 1) participate in an interactive
discussion of child advocacy to develop a working
definition that fits their clinical setting, 2) identify
faculty at their institutions who could serve as models
and mentors for advocacy training, 3) discuss training
methods used at our institutions (scavenger hunt/ photo
essay, community connections and case-based advocacy
projects) to promote teaching and learning about
community involvement and child advocacy and 4) work in
small groups to adapt these methods to each participant’s
home institutions and present the results to the
workshop. The participants will be enrolled in a
post-workshop LISTSERVE to share experiences over the
ensuing year.
D. M. Keller, J. A. Andrake, S. Starr and E. Schulte,
UMass Medical School, Worcester, MA, SUNY Upstate
Medical University, Syracuse, NY, and Albany Medical
College, Albany, NY
5604 Evaluation
of Curricular Innovations and Program Designs in Medical
Education Research
In education, research is often
focused on the determination of progress that students
have made toward educational goals. These studies use
methodologies that not only determine outcomes but also
analyze the process with which these outcomes are
derived. Researchers in medical education are often
faced with the difficulty of defending their
methodologies to "peer-reviewers" who are
accustomed to quantitative analysis of traditional
scientific papers.
The methodologies in educational research may be
classified into two broad categories: quantitative and
qualitative studies. For medical education research,
quantitative studies focus on the outcomes of the study
while qualitative studies explore the process. Both
types of research are necessary and should be selected
based on the research question. In addition, the view of
scholarship in medical education not only encompasses
the methodologies, but also the rigor with which these
methodologies are applied to the program design.
This workshop will address the use of varying
methodologies in medical education research by reviewing
the evaluation methods for several innovative curricular
programs. By comparing and contrasting the methodologies
employed in each of the studies, participants will be
able to appreciate the uses of quantitative and
qualitative designs in medical education, generate
research questions and formulate a research design for
their own programs.
Kuo, G. S. Blaschke, B. S. Siegel, W. Risko, and J.
P. Hafler, UCLA Medical Center, Los Angeles, CA, Naval
Medical Center, San Diego, CA, Boston Medical Center,
Boston, MA, Children’s Hospital, Boston, MA, and
Harvard Medical School, Boston, MA
5605 Handheld
Computers in Clinical Pediatric Practice
Handheld computers are rapidly
evolving into an indispensable tool for the clinician.
Though handheld computers have been limited in the past
to scheduling, to-do lists, brief notes, and phone
lists, progressive application development is providing
reference tools, medical calculators, charge capture
programs, electronic prescription writing software,
procedure logs, web browsers, EMR integration, research
databases, evidence-based medicine tools, and multimedia
applications permitting access to telemedicine.
The purpose of our workshop is to provide
participants with hands-on experience employing a
variety of software applications on the most common
handheld computers. To demonstrate the utility of
applications, clinical cases will be employed.
Participants will be led through the cases step-by-step
so that firsthand experience in handheld computers will
be acquired. A brief discussion period will follow each
case to elaborate on the extended utility of presented
applications, as well as other commercially available
programs. In addition, guidelines will be introduced for
evaluating future software and technologies, as they
become available. Participants will receive a resource
list to facilitate ongoing education in the growing
field of handheld computing. No prior knowledge in the
use of handheld computers is required.
T. L. Courtney, Children¹s Hospital of The King¹s
Daughters and Eastern Virginia Medical School, Norfolk,
VA, K. Johnson, Johns Hopkins University, Baltimore, MD,
and A. Meyers, Boston Medical Center, Boston, MA
5606 Introductory
Techniques for Pediatric Research
Clinical pediatricians are often
interested in a number of potential research topics but
have difficulty translating their ideas into coherent
research projects. This workshop is designed to provide
clinically oriented pediatricians with the basic
epidemiologic and analytic tools needed to plan, design,
and begin to analyze a clinical research project.
The primary activity of this workshop will be working
through an exercise developed by the workshop leaders.
The exercise will open with a proposed research topic.
The workshop attendees and leaders will work through the
exercise together to develop a research strategy that
includes the development of an appropriate research
hypothesis, the selection of proper outcome measures and
the type of data that should be collected. The exercise
will then work through a preliminary organization and
analysis of data provided in the exercise. Brief
didactic interludes will be woven into the workshop
exercise and will focus on commonly used, and often
misunderstood, statistical tools such as relative risks,
odds ratios, confidence intervals and p-values. A
personal computer will be used to demonstrate the use of
those techniques with the data included in the exercise.
K. C. Schoendorf and W. G. Adams. National Center for
Health Statistics, CDC, Hyattsville, MD, and Department
of Pediatrics, Boston Medical Center, Boston, MA
5607 Moving
Resident Competencies from Edict to Implementation in
the Continuity Setting: Developing an Individualized
Learning Plan (ILP)
This faculty workshop will help
participants develop tools for the implementation of
competency-based assessment in the continuity setting
using the ILP as an approach to monitoring resident
performance. We will review the six professional
competencies determined by the ABMS and ACGME: patient
care, professionalism, interpersonal and communication
skills, medical knowledge, practice-based learning and
improvement and systems-based practice. A draft of the
pediatric RRC specialty-specific components, timeline
for implementation and suggested assessment tools will
also be discussed.
Attendees will break into subgroups to focus on one
of three competencies particularly suited to being
taught in the continuity setting: 1) professionalism; 2)
interpersonal and communication skills; and 3)
practice-based learning and improvement. Each subgroup
collaboratively will develop an ILP for resident
assessment at the outset of residency and for monitoring
progress throughout training (e.g., to assess
effectiveness in specific interpersonal skills and
communication, programs may elect to include data in the
ILP from patient/parent satisfaction surveys obtained at
regularly, scheduled intervals). Subgroups will present
their ILP templates for group discussion. A summary from
the three subgroups will be mailed after the meeting to
all participants for their use.
W. Davis, P. Algranati, R. Collins, J. Drutz, M.
Dumont-Driscoll, S. Feigelman, D. Kittredge, J. Olsson,
S. Riesen, and J. Serwint, APA Continuity SIG Task Force
Sponsored Jointly with the APA Continuity Directors
SIG
5608 Pediatric
Obesity: Practical Evaluation and Treatment Strategies
for Primary Care Providers
The United States is experiencing
an epidemic of pediatric obesity. However, many primary
care providers report that obesity is one of the most
frustrating and difficult problems in their practices.
In this workshop, we will provide practical strategies
for evaluating and treating obese children in primary
care. To maximize learning and relevance the session
will be split. Approximately one-third of the session
will focus on expert committee recommendations for
evaluation and behavioral treatment strategies. We will
address skills for identification of obesity, screening
for both rare endogenous causes of obesity and more
common obesity-associated conditions or risk factors,
assessment of emotional and psychosocial states, eating
and activity assessment, and indications for
consultation with an obesity specialist. For treatment,
we will address the most successful strategies for diet
and physical activity counseling, changing the household
environment, self-monitoring, goal setting and
contracting, parenting skills training, maintenance and
relapse prevention, and the potential role of drug
therapies. The other two-thirds of the session will
consist of case discussions and group problem solving.
Cases will address practical evaluation and management
challenges facing primary care providers.
T. N. Robinson and S. E. Barlow, Dept. of Pediatrics,
Stanford University, Palo Alto, CA, and Dept. of
Pediatrics, St. Louis University School of Medicine, St.
Louis, MO
5609 Using
Systematic Review Evidence To Inform Clinical Decision
Making in Children
The Cochrane Child Health Field
facilitates the identification, organization,
dissemination and utilization of up-to-date synthesized
research evidence about effective care for children. The
overall aim of child-focused systematic reviews of
effectiveness should be to improve the quality of health
care, and ultimately health outcomes for children. This
is likely to be achieved only if relevant research
findings are accessed, interpreted and appropriately
incorporated into practice by health care providers.
The challenges of incorporating effective
evidence-based practices into daily health care
decisions are indeed large. Health care providers have
access to a large volume of high quality research
evidence and guidance about effectiveness, including
electronic publications of systematic reviews in the
Cochrane Library. What issues does the health care
provider face when questioning whether evidence is
applicable to a specific clinical question? What does a
health care provider do when faced with results of
systematic reviews that appear to report conflicting
evidence?
Cochrane Child Health Field leaders will facilitate
an interactive discussion with workshop participants to
address the above questions, using the meta-analyses
from the Cochrane library and paper-based journals as
working examples. Attendees will learn how to deal with
publication bias, quality of included RCTs, grey
literature and RCTs published in languages other than
English. Challenges with dealing with evidence from
Complementary and Alternative Medicine will also be
explored.
T. P. Klassen, Cochrane Child Health Field, Stollery
Children’s Hospital, Professor and Chair, Department
of Pediatrics, University of Alberta, Edmonton, Canada,
Maureen O’Donnell, Women’s and Children’s Health
Centre of British Columbia and Department of Pediatrics,
University of British Columbia, Vancouver, Canada,
Virginia Moyer, The University of Texas Medical School
at Houston, Houston, TX, and R. Armstrong, Women’s and
Children’s Health Centre of British Columbia and
Department of Pediatrics, University of British
Columbia, Vancouver, Canada
2:00pm – 5:00pm
Special Interest Groups
5610 Behavioral
Pediatrics
This
year's Behavioral Pediatrics SIG will focus on the
pediatrician's role in working with a variety of family
issues beyond straightforward behavior management and
medications. Our
presenters will be Dr. William Coleman of the Department
of Pediatrics at the University of North Carolina, and
Dr. Barbara Howard of Johns Hopkins School of Medicine
in Baltimore. Their topic is Behavioral Interactional
Problems: Family Systems Techniques.
Problems such as parent-child conflict,
child/parent depression, sleep problems, and
social-emotional complications of ADHD will be addressed
with a family-oriented approach that views problems and
solutions within the family context in which they arise.
The family is the physician's great resource.
Participants will learn to: 1) identify problems
suitable for family counseling; 2) interview families;
3) assess family functioning; 4) help families adapt and
develop their own solutions; and 5) deal with
disappointment and failure.
Teaching methods include case studies,
interactive discussions, an extensive syllabus, videos
of family interviews and a live first-time unrehearsed
interview with a real family referred by a local
pediatrician.
There
will also be a brief business meeting to discuss updates
on board certification and residency and fellowship
training issues.
For further information contact Dan Coury at dcoury@chi.osu.edu.
Chair: Dan Coury, Dcoury@chi.osu.edu
5611 Culture,
Ethnicity and Health Care
Welcome to current and new
members. The SIG is planning an informative and cohesive
discussion for the 2002 Annual Meeting in Baltimore. We
plan to invite speakers to address one or more of the
following critical issues: discrimination and hate
crimes: impact on health status and the role of health
care providers; Culturally and Linguistically
Appropriate Services, National Standards (DHHS Office of
Minority Health); and the 2000 Census (US Census
Bureau). We will also address models of incorporating
cultural diversity in education, research and health
care. We expect to share abstract presentations and
discuss strategies to develop APA policy statements on
culture, ethnicity and health care. If anyone is
interested ahead of time, please don't hesitate to reach
one of us.
Cochairs: Glenn Flores, Glenn.Flores@bmc.org,
Lee Pachter, LPachter@stfranciscare.org,
and John I. Takayama, jtaka@itsa.ucsf.eu
5612 Environmental
Health
All Pediatric Academic Societies'
(PAS) members and meeting attendees are invited to join
us at the annual Special Interest Group Meeting to be
held in Baltimore during the PAS annual meetings. We
continue to be an informal group committed to the
protection of children and environmental hazards through
our interest and/or our direct professional activity.
Based on the highly successful format of our session
at the PAS meetings in May 2001, we again plan to
include in our meeting:
- Educational session – lecture/discussion on a
current Peds Environmental Health topic
- Discussion of current issues and progress on
medical and health professional education and
curriculum development
- Select research presentations of general relevance
- Issues of advocacy in Peds Environmental Health
pertinent to Ambulatory Peds Association and PAS
members and attendees
The specific program will be announced in the next
APA newsletter. We hope to see you there. Please feel
free to contact SIG cochairs for questions or comments.
Cochairs: Ben Gitterman, bgitterm@cnmc.org,
and Jimmy Roberts, robertsj@musc.edu
5613 Injury
Control
The SIG on Injury Control plans to
have an update on the national Longitudinal Cohort Study
designed by Dr. Peter Scheidt. This study will enroll
more than 100,000 children and their families and follow
their progress for a number of years, correlating their
exposure status with certain health outcomes. Dr.
Scheidt has been instrumental in bringing this massive
research effort through its current planning stage, and
he will describe its potential impact vis-a-vis research
questions in childhood injury control.
The SIG also plans to discuss the new APA policies on
proposals for issuing position statements through the
Association's new journal, Ambulatory Pediatrics. We
will explore whether position statements on topics in
injury control should be formulated by one or several
SIG subcommittees.
Chair: Alan Woolf, woolf@a1.tch.harvard.edu
5614 Women
in Medicine
KNOW WHAT YOU ARE BEST AT AND JUST
DO IT!! Defining one's talents and skills is not always
straightforward. It is easy to get sidetracked with
tasks that need to be done. Additionally, styles for
doing things vary, but shoes don't fit all feet
comfortably. The Women in Medicine SIG will focus on
assessing one's assets and analyzing one's shortcomings.
The SIG will engage in an appreciative exercise as a
means of networking and then use the small networks to
build skill sets.
Chair: Carol Berkowitz, carolb@pol.net
2:00pm – 4:00pm
Topic Symposium
5700 Cancer,
Blood and the Kidney: Common Themes
Chair: Ellis D. Avner,
President-Elect, American Society of Pediatric
Nephrology and George R. Buchanan, President, American
Society of Pediatric Hematology/Oncology
Many children with cancer,
hematological disorders, or kidney disease have complex,
multisystem problems. Advances in cell and molecular
biology provide insights into the interrelationships of
cancer, blood, and the kidney and have led to new
diagnostic and therapeutic approaches for the clinician.
Such approaches are reviewed in this symposium, which
focuses specifically on the nephrological complications
of sickle cell anemia and bone marrow transplantation,
hematological complications of nephrotic syndrome, and
the molecular pathophysiology of WT-1-associated
disorders.
Sickle Cell Nephropathy: Pathophysiology and Therapy
Jon Scheinman, University of Kansas Medical Center,
Kansas City, KS
Thromboembolic Complications of the Nephrotic
Syndrome
M. Patricia Massicotte, University of Toronto, The
Hospital for Sick Children, Toronto, Canada
Renal Complications of Bone Marrow Transplantation
Ruth McDonald, University of Washington/Children's
Hospital & Regional Medical Center, Seattle, WA
Molecular Pathophysiology of Wilm's Tumor and
Denys-Drash/Frasier Syndromes
Max J. Coppes, Alberta Children's Hospital, Alberta,
Canada
Sponsored Jointly with the American Society of
Pediatric Hematology/Oncology and the American Society
of Pediatric Nephrology
2:00pm – 4:00pm
State of the Art Plenary
5701 Children
as Research Subjects: Ethical and Regulatory Issues
Chair: Myron Genel, Yale
University School of Medicine, New Haven, CT
A number of highly publicized
adverse events, including the death of two volunteers
participating in non-therapeutic research, and the
federal shutdown of research at many well-recognized
academic institutions because of inadequate compliance
with regulatory requirements have intensified scrutiny
of the protection afforded to human subjects
participating in research, including children.
Furthermore a Maryland court has recently decreed that
children cannot participate in research without the
potential for direct benefit. As a consequence there has
been increasing media attention and Congressional
concern regarding the adequacy of institutional
oversight and investigator attentiveness to established
standards and regulations. In addition, new regulations
issued under the Health Insurance Portability and
Accountability Act of l996(HIPAA) threaten the capacity
to conduct health services and outcomes research. These
issues will be addressed in the 9th annual Public Policy
Plenary Symposium in an interactive format intended to
stimulate dialogue among the members of the panel and
with the audience.
Overview
Myron Genel, Yale University School of Medicine, New
Haven, CT
Overseeing Research in Children: New Concerns and New
Regulations
Alan R. Fleischman, The New York Academy of
Medicine, New York, NY
International Health Research: Where Bioethics,
Politics and Economics Converge
Eric M. Meslin, Indiana University Center for
Bioethics, Indianapolis, IN
Compliance: What You and Your Institution Need to
Know (and Do)
Pearl O'Rourke, Partners HealthCare System, Inc.,
Boston, MA
HIPAA, Privacy & Confidentiality and Research In
Children?
Brian Kamoie, The George Washington University,
Washington, DC
Discussion
Sponsored Jointly with the Public Policy
Council of the APS, AMSPDC, SPR and the Public Policy
Committee of the APA
Ssupportedin part by an educational grant from Columbus
Children's Hospital
2:30pm – 4:00pm
State of the Art Plenary
5702 Developmental
Biology and Pediatrics
Chair: David H. Rowitch,
Harvard Medical School, Dana-Farber Cancer Institute,
Boston, MA
Basic studies of developmental
biology can have profound implications for child health
and disease. In this State of the Art Plenary Plenary,
pediatric investigators at the forefront of basic
science will describe recent advances in our
understanding of development of the central nervous
system, heart and blood with implications for the
pathophysiology of congenital malformations, acquired
disease and pediatric cancer.
Hedgehog Signaling in CNS Development and
Tumorigenesis
David H. Rowitch, Harvard Medical School,
Dana-Farber Cancer Institute, Boston, MA
Molecular Pathways of Cardiac Development and
Congenital Heart Disease
Deepak Srivastava, The University of Texas
Southwestern Medical Center, Dallas, TX
Molecular Control of Hematopoietic Cell Lineage
Stuart H. Orkin, Dana Farber Cancer Institute,
Boston, MA
2:30pm – 4:00pm
State of the Art Plenary
5703 Insulin
Resistance Syndromes
Chairs: Alan Rogol, Insmed
Pharmaceuticals, Inc., Glen Allen, VA and Charlotte
Boney, Rhode Island Hospital, Providence, RI
Insulin resistance is the
underlying factor in many of the consequences of obesity
in childhood and adolescence, including ovarian
hyperandrogenism, hypertension, hyperlipidemia, and Type
2 diabetes. Obesity, dyslipidemia, and Type 2 diabetes
are components of SyndromeX in adults, a serious public
health issue. In addition, insulin has a role in the
regulation of leptin, the major signal of adiposity to
the brain. Dr. Arslanian will discuss insulin resistance
in polycystic ovary disease and Type 2 diabetes. Dr.
Freedman will review the cardiac risk factors related to
insulin resistance, and Dr. Roemmich will discuss the
insulin-leptin axis in obesity and puberty.
Insulin Resistance: It's Not for Adults Only
Silva A. Arslanian, Children's Hospital of
Pittsburgh, Pittsburgh, PA
Clustering of Coronary Heart Disease Risk Factors in
Obese Children
David Freedman, Division of Nutrition and Physical
Activity, Centers for Disease Control, Atlanta, GA
The Insulin-Leptin Axis in Puberty
James Roemmich, School of Medicine and Biomedical
Sciences, University of Buffalo, Buffalo, NY
Sponsored Jointly with the Lawson Wilkins Pediatric
Endocrine Society and the American Academy of Pediatrics
2:30pm – 4:00pm
State of the Art Plenary
5704 Pediatric
Research and the Human DNA Sequence: Approaching Defects
of Host Defenses in the Genomic Era
Chairs: Jennifer M. Puck,
National Human Genome Research Institute, National
Institutes of Health, Bethesda, MD and Stephen J.
Chanock, National Cancer Institute, National Institutes
of Health, Bethesda, MD
This session will provide a
framework for understanding how genetics and genomics
can accelerate progress in understanding defects in
immunity and host defenses. Host defenses are used to
demonstrate the general power of these technologies to
elucidate pathogenetic mechanisms and predict disease
susceptibility. This program will address classical and
novel approaches to discovering genes underlying primary
immunodeficiencies as well as characterization of
modifier genes. A brief overview of the human genome,
its structure, contents and relationship to genomes of
other species will be presented in order to discuss
current and future potential for understanding pediatric
diseases and treatments. Emphasis will be placed on the
continued prime importance of careful clinical
observation, as well as the ethical and practical issues
that genome science presents to society.
Finding a Multitude of Disease Genes for Primary
Immune Disorders
Jennifer M. Puck, National Human Genome Research
Institute/National Institutes of Health, Bethesda, MD
The Role of Vairation in the Human Genome: Single
Nucleotide Polymorphisms and Disease Modifiers
Stephen J. Chanock, National Cancer Institute,
National Institutes of Health, Bethesda, MD
Applications of Genomic Technology to Understanding
Human Phenotypes
Aravinda Chakravarti, Johns Hopkins University
School of Medicine, Baltimore, MD
Sponsored Jointly with the Pediatric Infectious
Diseases Society
4:15pm – 6:15pm
Topic Symposium
5800 End-of-Life
Palliative Care
Chair: Marcia Levetown,
Independent Pain and Palliative Care Consultant,
Houston, TX
53,000 children die annually
in the United States and many more live with chronic,
life-threatening conditions. Yet, pediatric education
and subspecialty training do not currently prepare
practitioners to care for these needy children, their
parents, community and survivors. This symposium,
presented by a pediatric hematologist/oncologist,
pediatric palliative care physician and a bereaved
parent, will discuss how to incorporate palliative care
into pediatric care. Specific highlights are the
presentation of an i |
