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COMPUTERS/MEDICAL INFORMATICS

12:00pm-3:00pm
Mini Course
4104 The New Pediatrics in the Genomic Era
Chair: Isaac Kohane, Lyle Palmer and Scott Pomeroy, Children's Hospital, Boston, MA
The sequencing of the human genome and the availability of large-scale genomic measurement technologies will change the manner in which clinical care and pediatric research is conducted. We will address how these genomic technologies, bioinformatics and genetic epidemiology can be applied in these endeavors.

3:15pm-5:15pm
Topic Symposium
4200 Cloning and Embryonic Stem Cells
Chair: Judith Hall, University of British Columbia, Vancouver, Canada
There is enormous public interest in cloning and embryonic stem cells. This symposium will update the pediatric community on recent developments and raises a variety of policy and ethical issues.

– Endocrinology

5112 Medical Informatics
The APA Informatics SIG, now in its third year, is a community for researchers interested in the field of pediatric (medical) informatics. Each year, our members hold workshops and present our work in various sessions during the Annual Meeting.

5115 Practice-Based Research Networks
Chair: Richard Pan, r.pan@ucdmc.ucdavis.edu

1:45pm-2:30pm
State of the Art Plenary
5590 Children as Victims of Bioterrorism: Protecting the Fragile Host
Chairs: Phyllis Dennery, Stanford University School of Medicine, Palo Alto, CA and Tina Lee Cheng, Johns Hopkins University School of Medicine, Baltimore, MD
With the recent world events and new threats of biowarfare, what should pediatricians know? Due to their size and physiology, children are at higher risk of injury from bioterrorism. This session will address the biology, clinical manifestations, and possible preventive strategies for likely biowarfare agents. The unique vulnerability of the child will be addressed.

2:00pm-4:00pm
State of the Art Plenary
5701 Children as Research Subjects: Ethical and Regulatory Issues
Chair: Myron Genel, Yale University School of Medicine, New Haven, CT
A number of highly publicized adverse events, including the death of two volunteers participating in non-therapeutic research, and the federal shutdown of research at many well-recognized academic institutions because of inadequate compliance with regulatory requirements have intensified scrutiny of the protection afforded to human subjects participating in research, including children. Furthermore a Maryland court has recently decreed that children cannot participate in research without the potential for direct benefit. As a consequence there has been increasing media attention and Congressional concern regarding the adequacy of institutional oversight and investigator attentiveness to established standards and regulations. In addition, new regulations issued under the Health Insurance Portability and Accountability Act of l996(HIPAA) threaten the capacity to conduct health services and outcomes research. These issues will be addressed in the 9th annual Public Policy Plenary Symposium in an interactive format intended to stimulate dialogue among the members of the panel and with the audience.

5605 Handheld Computers in Clinical Pediatric Practice
Handheld computers are rapidly evolving into an indispensable tool for the clinician. Though handheld computers have been limited in the past to scheduling, to-do lists, brief notes, and phone lists, progressive application development is providing reference tools, medical calculators, charge capture programs, electronic prescription writing software, procedure logs, web browsers, EMR integration, research databases, evidence-based medicine tools, and multimedia applications permitting access to telemedicine.

5606 Introductory Techniques for Pediatric Research
Clinical pediatricians are often interested in a number of potential research topics but have difficulty translating their ideas into coherent research projects. This workshop is designed to provide clinically oriented pediatricians with the basic epidemiologic and analytic tools needed to plan, design, and begin to analyze a clinical research project.

2:30pm-4:00pm
State of the Art Plenary
5704 Pediatric Research and the Human DNA Sequence: Approaching Defects of Host Defenses in the Genomic Era
Chairs: Jennifer M. Puck, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD and Stephen J. Chanock, National Cancer Institute, National Institutes of Health, Bethesda, MD
This session will provide a framework for understanding how genetics and genomics can accelerate progress in understanding defects in immunity and host defenses. Host defenses are used to demonstrate the general power of these technologies to elucidate pathogenetic mechanisms and predict disease susceptibility. This program will address classical and novel approaches to discovering genes underlying primary immunodeficiencies as well as characterization of modifier genes. A brief overview of the human genome, its structure, contents and relationship to genomes of other species will be presented in order to discuss current and future potential for understanding pediatric diseases and treatments. Emphasis will be placed on the continued prime importance of careful clinical observation, as well as the ethical and practical issues that genome science presents to society.

8:00am-10:00am
Poster Symposium
7058 Modeling To Detect Bioterrorism and Other Threats to Public Health
Chairs: Stephen M. Downs and Sarah S. Long

1:45pm-3:45pm
Hot Topic
7702 Disaster Preparedness: Beyond 9/11
Chairs: Tina L. Cheng, Johns Hopkins University School of Medicine, Baltimore, MD; Danelle Laraque, Mount Sinai School of Medicine, New York, NY; and Benard Dreyer, New York, NY
The impact of 9/11 and the public health aftermath have affected us personally and professionally. This session will address what the child health professional needs to know regarding disaster planning and preparedness. Speakers will review and provide updates on national and regional systems for emergency management and how those systems interact with local public health agencies, the pediatrician's role in the community's preparedness including what the school system, the pediatric office and the patient should be doing to prepare and respond, recognition and management of chemical and biologic agents of terrorism, and the psychological reactions to disaster and stress.

Disaster Planning and Preparedness for Child Health Professionals
George L. Foltin, New York University School of Medicine and Bellevue Hospital Center, New York, NY
Biologic Agents of Terrorism
Anne Fine, New York City Department of Health, New York, NY
Chemical Agents of Terrorism
Fred Henretig, University of Pennsylvania School of Medicine and Children's Hospital of Philadelphia, Philadelphia, PA
Helping Children Cope with Terrorism and Disasters
David J. Schonfeld, Yale University School of Medicine, New Haven, CT
Discussion