VULNERABLE
AND UNDERSERVED POPULATIONS
Saturday, May 4, 2002
8:30am 11:30am
Special Interest Group
4004
Child Abuse
Chair: John M. Levanthal, john.leventhal@yale.edu
12:00pm 3:00pm
Mini Course
4100
Adolescent Medicine - Part ICurrent Research Issues
Chair: Donald E. Greydanus,
Michigan State University, Kalamazoo, MI
An update of various issues in
adolescent health care will be presented. Dr. Charles
Irwin Jr. will present current research on Preventive
Health Services in Adolescents. Dr. Anna-Barbara
Moscicki will discuss the changing Pap Smear guidelines
for adolescents, which are being developed by the
American Cancer Society. Finally, Dr. Renee Jenkins and
Dr. Tina Raine will review current research issues in
emergency contraception for adolescents. Questions will
be encouraged from the audience.
Preventive Health Care in Adolescents: Current
Research
Charles E. Irwin, University of California, San
Francisco, CA
Pap Smears and Cervical Cytology: New Guidelines
Anna-Barbara Moscicki, University of California, San
Francisco, CA
Research Issues in Contraception in Adolescents
Renee R. Jenkins, Howard University College of
Medicine, Washington, DC
Tina Renee Raine, University of California, San
Francisco General Hospital, San Francisco, CA
12:00pm 3:00pm
Mini Course
4101
Genetics for the Pediatrician: The Intersection of
General Pediatrics and Genetics
Chairs: Benjamin Siegel,
Boston University School of Medicine, Boston Medical
Center, Boston, MA and Jeff Milunsky, Boston University
School of Medicine, Boston Medical Center, Boston, MA
Approaches to the diagnosis,
management, and discussion of the psychosocial, legal
and ethical issues of genetics, from screening, to
giving bad news, to helping families understand and cope
with the impact of genetic diseases within a family
context, have always been challenges for the general
pediatrician. There are new technologies in the genetic
testing of children and family members that expand our
ability to accurately diagnose, provide anticipatory
guidance and genetic counseling to individuals and
parents, so that they may make more informed
reproductive choices. It is clear that pediatricians and
clinical geneticists need to work collaboratively as a
team to provide the most comprehensive care possible.
This session will examine the information needed from
the clinical assessment of the child, in relationship to
the family context that increases the likelihood that
the pediatrician is dealing with a possible genetic
issue. Exploration of the history, including the family
pedigree, aspects of the physical exam that alerts the
pediatrician to a possible genetic problem, the referral
process to a clinical geneticist, and the legal,
ethical, and psychosocial issues that should be
addressed with the individual or family member before
the referral to the geneticist will be presented. The
process of the clinical genetic evaluation will be
explored, highlighting the ethical, legal and
psychosocial issues. Current and newer genetic
technologies will be reviewed. The collaborative process
between the patient/family, the pediatrician, and
geneticist will be examined.
Overview
Benjamin S. Siegel, Boston University School of
Medicine, Boston Medical Center, Boston, MA
The Approach to the Genetic Evaluation of a Child
with a Suspected Genetic Disorder and the Use of Current
and Newer Genetic Technologies
Jeff M. Milunsky, Boston University School of
Medicine, Boston Medical Center, Boston, MA
Break
The Referral Process to a Clinical Geneticist: A General
Pediatric Perspective
Benjamin S. Siegel, Boston University School of
Medicine, Boston Medical Center, Boston, MA
The Ethical, Legal and Social Issues of Clinical
Genetics
Benjamin S. Siegel, Boston University School of
Medicine, Boston Medical Center, Boston, MA
12:00pm 3:00pm
Mini Course
4105
Update on Injury Control
Chair: Gary A. Smith,
Children's Hospital, Columbus, OH
The field of injury control
continues to evolve. Over the past decade new sources of
injuries have arisen, new information on old or
overlooked causes has been obtained, and new techniques
for preventing and minimizing the impact of certain
injuries have been developed and evaluated. This session
will review these advances and outline pertinent next
steps for health policy, research and clinical care.
Overview
Gary A. Smith, Columbus Children's Hospital,
Columbus, OH
Firearm Injuries: Just the Facts
M. Denise Dowd, Children's Mercy Hospital,
University of Missouri, Kansas City, MO
Update on Product-Related Injuries
Gary A. Smith, Columbus Children's Hospital,
Columbus, OH
Break
Prevention of Motor Vehicle-Related Injuries
Phyllis F. Agran, Pediatric Injury Prevention
Research Group, Health Policy and Research, University
of California, Irvine, CA
Current Federal Agency Priorities in Childhood Injury
Prevention Research
Richard A. Schieber, Centers for Disease Control and
Prevention, Atlanta, GA
3:15pm 5:15pm
Platform Session
4251
Behavioral Pediatrics I
Chairs: Daniel Lee Coury
and Ronald V. Marino
3:15pm 5:15pm
Platform Session
4252
Health Services Research: Quality of Care
Chairs: Glenn Flores and
Richard C. "Mort" Wasserman
5:15pm 7:15pm
Poster Session I (Author Attended)
and Opening Reception
Behavioral
Pediatrics
Sunday, May 5, 2002
8:00am 10:00am
Topic Symposium
5001
Measuring and Improving Quality in Academic Medical
Centers
Chair: Michael Apkon, Yale
University School of Medicine, New Haven, CT
Applying scientific approaches
to quality management presents an important leadership
challenge for Academic Medical Centers to enhance health
care delivery. This symposium will review new paradigms
with which to examine opportunities for measuring and
improving the process of care delivery. The symposium
will also consider areas of congruence as well as areas
of opposition between the educational and care-delivery
missions of Academic Medical Centers where
often-competing interests of research, clinical care,
and education create a particularly challenging
environment for quality management.
The Case for Quality
Michael Apkon, Yale University School of Medicine,
New Haven, CT
Measuring the Quality of Care
Rita Mangione-Smith, University of California, Los
Angeles, CA
Comparing Quality Across Institutions
Murray M. Pollack, Children's National Medical
Center, George Washington University School of Medicine,
Washington, DC
Pediatric Outcomes Measurement in Academic Medical
Centers
Jeffrey H. Silber, The Children's Hospital of
Philadelphia and the University of Pennsylvania School
of Medicine, Philadelphia, PA
Aligning the Missions of Providing Care and Educating
Physicians
Martha Radford, Yale University School of Medicine,
Yale New Haven Health System, New Haven, CT
Discussion
8:00am
10:00am
Platform Session
5050
Behavioral Pediatrics II
Chairs: Robin L. Hansen and
Marsha D. Rappley
8:00am 10:00am
Platform Session
5051
General Pediatrics I
Chairs: Benjamin Gitterman
and Linda Diane Meloy
8:00am 10:00am
Poster Symposium
5055
New Topics in Childhood Immunization Delivery
Chairs: Lance Rodewald and
Judith S. Shaw
8:00am 11:00am
Mini Course
5090
Adolescent Medicine - Part IIEating Disorders
Chair: Donald E. Greydanus,
Michigan State University, Kalamazoo, MI
This presentation will present
an overview of the research on the diagnosis,
assessment, and treatment (therapy: including
psychological and pharmacological; settings: inpatient,
day treatment, and outpatient) of adolescents with
eating disorders. A brief comparison of the diagnostic
criteria used by the American Psychiatric Association
and the World Health Organization will be presented and
discussed regarding the relevance to research design and
diagnosis. Special issues (such as research design,
subject selection, research settings, geographical
location, definitions, terminology, race and culture,
managed care, and reimbursement) and their impact on our
current knowledge base and on treatment choices will be
addressed. Recommendations for future directions in
assessment, treatment, and research will be offered.
Overview
Donald E. Greydanus, Michigan State University
College of Human Medicine, Kalamazoo, MI
Diagnostic Criteria: American Psychiatric
Association, World Health Organization, Implications for
Diagnosing Adolescents
Helen D. Pratt, Michigan State University, Center
for Medical Studies, Kalamazoo, MI
Special Issues: Subject Selection: Gender, Race,
Ethnicity, Sexual Orientation
Helen D. Pratt, Michigan State University, Center
for Medical Studies, Kalamazoo, MI
Research Design: Research/Treatment Settings,
Inpatient, Day Treatment, Outpatient, Hospital, Clinic,
Community, Geographical Location, Definitions,
Disorders, Recovery
Helen D. Pratt, Michigan State University, Center
for Medical Studies, Kalamazoo, MI
Break
Treatment Interventions: Psychological, Psycho-pharmacologic
Helen D. Pratt, Michigan State University, Center
for Medical Studies, Kalamazoo, MI
Treatment Outcomes
Helen D. Pratt, Michigan State University, Center
for Medical Studies, Kalamazoo, MI
Recommendations for Future Research
Helen D. Pratt, Michigan State University, Center
for Medical Studies, Kalamazoo, MI
Discussion
11:45am
1:45pm
Poster Session II (Author Attended)
General
Pediatrics and Preventive Pediatrics
1:45pm 2:30pm
State of the Art Plenary
5590
Children as Victims of Bioterrorism: Protecting the
Fragile Host
Chairs: Phyllis Dennery,
Stanford University School of Medicine, Palo Alto, CA
and Tina Lee Cheng, Johns Hopkins University School of
Medicine, Baltimore, MD
With the recent world events
and new threats of biowarfare, what should pediatricians
know? Due to their size and physiology, children are at
higher risk of injury from bioterrorism. This session
will address the biology, clinical manifestations, and
possible preventive strategies for likely biowarfare
agents. The unique vulnerability of the child will be
addressed.
Overview
Phyllis A. Dennery, Stanford University School of
Medicine, Palo Alto, CA
Children as Victims of Bioterrorism: Protecting the
Fragile Host
Ralph D. Feigin, Baylor College of Medicine,
Houston, TX
Discussion
2:00pm
4:00pm
State of the Art Plenary
5701
Children as Research Subjects: Ethical and Regulatory
Issues
Chair: Myron Genel, Yale
University School of Medicine, New Haven, CT
A number of highly publicized
adverse events, including the death of two volunteers
participating in non-therapeutic research, and the
federal shutdown of research at many well-recognized
academic institutions because of inadequate compliance
with regulatory requirements have intensified scrutiny
of the protection afforded to human subjects
participating in research, including children.
Furthermore a Maryland court has recently decreed that
children cannot participate in research without the
potential for direct benefit. As a consequence there has
been increasing media attention and Congressional
concern regarding the adequacy of institutional
oversight and investigator attentiveness to established
standards and regulations. In addition, new regulations
issued under the Health Insurance Portability and
Accountability Act of l996(HIPAA) threaten the capacity
to conduct health services and outcomes research. These
issues will be addressed in the 9th annual Public Policy
Plenary Symposium in an interactive format intended to
stimulate dialogue among the members of the panel and
with the audience.
Overview
Myron Genel, Yale University School of Medicine, New
Haven, CT
Overseeing Research in Children: New Concerns and New
Regulations
Alan R. Fleischman, The New York Academy of
Medicine, New York, NY
International Health Research: Where Bioethics,
Politics and Economics Converge
Eric M. Meslin, Indiana University Center for
Bioethics, Indianapolis, IN
Compliance: What You and Your Institution Need to
Know (and Do)
Pearl O'Rourke, Partners HealthCare System, Inc.,
Boston, MA
HIPAA, Privacy & Confidentiality and Research In
Children?
Brian Kamoie, The George Washington University,
Washington, DC
Discussion
Sponsored jointly with the Public Policy Council
of the APS, AMSPDC, SPR and the Public Policy Committee
of the APA
Partially supported by an educational grant from
Columbus Children's Hospital
2:00pm 5:00pm
Special Interest Group
5611
Culture, Ethnicity and Health Care
Welcome to current and new
members. The SIG is planning an informative and cohesive
discussion for the 2002 Annual Meeting in Baltimore. We
plan to invite speakers to address one or more of the
following critical issues: discrimination and hate
crimes: impact on health status and the role of health
care providers; Culturally and Linguistically
Appropriate Services, National Standards (DHHS Office of
Minority Health); and the 2000 Census (US Census
Bureau). We will also address models of incorporating
cultural diversity in education, research and health
care. We expect to share abstract presentations and
discuss strategies to develop APA policy statements on
culture, ethnicity and health care. If anyone is
interested ahead of time, please don't hesitate to reach
one of us.
Cochairs: Glenn Flores, Glenn.Flores@bmc.org,
Lee Pachter, LPachter@stfranciscare.org,
and John I. Takayama, jtaka@itsa.ucsf.edu
4:15pm 6:15pm
Topic Symposium
5800
End-of-Life Palliative Care
Chair: Marcia Levetown,
Independent Pain and Palliative Care Consultant,
Houston, TX
53,000 children die annually
in the United States and many more live with chronic,
life-threatening conditions. Yet, pediatric education
and subspecialty training do not currently prepare
practitioners to care for these needy children, their
parents, community and survivors. This symposium,
presented by a pediatric hematologist/oncologist,
pediatric palliative care physician and a bereaved
parent, will discuss how to incorporate palliative care
into pediatric care. Specific highlights are the
presentation of an integrated model of care, beginning
at the time of diagnosis of a potentially
life-threatening condition, parental and patient
perspectives on the fight against disabling symptoms and
death, and the ethics behind the decision-making process
that confronts the family and medical care team.
Overview
Marcia Levetown, Independent Pain and Palliative
Care Consultant, Houston, TX
Incorporating Pediatric Palliative Care Principles
into Oncology Care from the Time of Diagnosis
Joanne Hilden, The Cleveland Clinic Foundation,
Cleveland, OH
Community Resources for Pediatric Palliative Care
Sue Huff, Center for Hospice and Palliative Care,
Cheektowaga, NY
The Value of a Day in the Life of a Terminally Ill
Child
Jan Wheeler, Ed. D Candidate, University of Houston,
Houston, TX. Bereaved Mother
Ethical Issues in Medical Decision-Making: When the
Patient is a Child
Marcia Levetown, Independent Pain and Palliative
Care Consultant, Houston, TX
Sponsored jointly with the American Society of
Pediatric Hematology/Oncology
Monday, May 6, 2002
8:00am 10:00am
Platform Session
6059
Underserved Populations I
Chairs: Carrie L. Byington
and Charles Feild
9:00am 12:00pm
Workshops
6100
Achieving Cultural Competency in Pediatrics
The United States rapidly is
growing more culturally diverse. In several cities,
whites already are in the minority. Culture has a
profound impact on pediatrics, affecting multiple
aspects of clinical care, including outcomes, processes,
quality, satisfaction, obtaining an accurate history,
and adherence. Cultural competency is the ability to
recognize and appropriately respond to key cultural
characteristics that affect clinical care in the major
cultural groups seen in your practice. In this workshop,
participants will learn about a model of cultural
competency that can be applied to any cultural group
that might be encountered by the pediatrician. This
model is based on five aspects of culture that affect
clinical care: 1) normative cultural values; 2) language
issues; 3) folk illnesses; 4) parent beliefs; and 5)
provider practices. The Latino and African-American
cultures will be used to illustrate the most important
ways that culture impacts pediatric care, drawing on the
rich available literature and the personal experience of
the workshop leaders.
Using an evidence-based approach derived from
critical studies on Latino and African-American culture,
workshop participants will learn and master the cultural
competency model. Illustrative cases (including
videotapes) will be presented to challenge participants
and further solidify their skills. Participants can
expect to acquire practical skills for recognizing and
appropriately responding to crucial aspects of culture
and language that affect pediatric care.
G. Flores and G. Askew, Department of Pediatrics,
Boston Medical Center and Boston University Schools of
Medicine & Public Health, Boston, MA
10:15am 12:15pm
Platform Session
6202
General Pediatrics II
Chairs: Thomas M. Ball and
Mary Ottolini
10:15am 12:15pm
Platform Session
6204
Underserved Populations II
Chairs: Paul L. McCarthy
and Ronald C. Samuels
8:00am 10:00am
Platform Session
7055
Health Services Research: The Practice and the Patient
Chairs: Paul M. Darden II
and Modena Wilson
Tuesday, May 7, 2002
8:00am 10:00am
Platform Session
7061
Underserved Populations III
Chairs: Jay H. Mayefsky and
John I. Takayama
8:45am 11:45am
Special Interest Group
7115
Serving the Underserved
We have invited local health
department experts to describe the innovative data
collection system used in Baltimore across several
different city departments. This should be a fascinating
discussion about the capacity of local government to
provide comprehensive population-based data that would
be important for health monitoring, tracking, etc. Next,
we have invited faculty from the Dyson Initiatives
funded sites to discuss their successes and failures in
getting residents involved in community based projects.
We will spend time during the SIG meeting to update
members about innovative approaches, lessons learned,
etc. that have come about as a result of the APA
National Pediatric Faculty Development Scholars Program.
Finally, we will present for the first time some of the
data from the curriculum development project.
Cochairs: Jeff Brown, jbrown@dhha.org,
and Ron Samuels, samuels@tch.harvard.edu
1:45pm
3:45pm
Hot Topic
7700
Models for Building Mental Health Capacity in Pediatric
Primary Care
Chair: Anne M. Gadomski,
The Mary Imogene Bassett Research Institute,
Cooperstown, NY
This session will describe
three models presently under study for building the
capacity of pediatric primary care sites to manage
childrens mental health problems. Two models are
based on enhancements or extra resources for primary
care providers, and the third is based on primary
providers' skills.
Speakers will describe ongoing research, present
interim data, and outline replicable interventions.
Following the presentations there will be an opportunity
for questions and discussion.
Overview
Anne M. Gadomski, Bassett Healthcare, Cooperstown,
NY
Building and Maintaining a Therapeutic Alliance in
Pediatric Primary Care
Lawrence Wissow, Johns Hopkins School of Public
Health, Baltimore, MD
Promoting Evidence-Based ADHD Treatment Among
Pediatricians
Jeff Epstein, Duke University Medical Center,
Durham, NC
Youth Partners in Care: A Quality Improvement Model
for Primary Care Treatment of Adolescent Depression
Lisa Jaycox, RAND, Arlington, VA
Discussion
1:45pm
3:45pm
Hot Topic
7702
Disaster Preparedness: Beyond 9/11
Chairs: Tina L. Cheng,
Johns Hopkins University School of Medicine, Baltimore,
MD; Danielle Laraque, Mount Sinai School of Medicine,
New York, NY; and Benard Dreyer, New York, NY
The impact of 9/11 and the
public health aftermath have affected us personally and
professionally. This session will address what the child
health professional needs to know regarding disaster
planning and preparedness. Speakers will review and
provide updates on national and regional systems for
emergency management and how those systems interact with
local public health agencies, the pediatrician's role in
the community's preparedness including what the school
system, the pediatric office and the patient should be
doing to prepare and respond, recognition and management
of chemical and biologic agents of terrorism, and the
psychological reactions to disaster and stress.
Disaster Planning and Preparedness for Child Health
Professionals
George L. Foltin, New York University School of
Medicine and Bellevue Hospital Center, New York, NY
Biologic Agents of Terrorism
Anne Fine, New York City Department of Health, New
York, NY
Chemical Agents of Terrorism
Fred Henretig, University of Pennsylvania School of
Medicine and Children's Hospital of Philadelphia,
Philadelphia, PA
Helping Children Cope with Terrorism and Disasters
David J. Schonfeld, Yale University School of
Medicine, New Haven, CT
Discussion
1:45pm
3:45pm
Platform Session
7803
Health Services Research
Chairs: Denise M. Dougherty
and Thomas B. Newman
1:45pm 3:45pm
Platform Session
7805
Underserved Populations IV
Chairs: Thomas G. DeWitt
and Victoria Meguid
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