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Health Services Research

12:00pm – 3:00pm
Mini Course
4105 Update on Injury Control
Chairs: Gary A. Smith, Children's Hospital, Columbus, OH
The field of injury control continues to evolve. Over the past decade new sources of injuries have arisen, new information on old or overlooked causes has been obtained, and new techniques for preventing and minimizing the impact of certain injuries have been developed and evaluated. This session will review these advances and outline pertinent next steps for health policy, research and clinical care.

3:15pm – 5:15pm
Topic Symposium
4200 Cloning and Embryonic Stem Cells
Chair: Judith Hall, University of British Columbia, Vancouver, Canada
There is enormous public interest in cloning and embryonic stem cells. This symposium will update the pediatric community on recent developments and raises a variety of policy and ethical issues.

3:15pm – 5:15pm
Platform Session
4251 Behavioral Pediatrics I
Chairs: Daniel Lee Coury and Ronald V. Marino

3:15pm – 5:15pm
Platform Session
4252 Health Services Research: Quality of Care
Chairs: Glenn Flores and Richard C. "Mort" Wasserman

3:15pm – 5:15pm
APA Committee
4301 APA Health Care Delivery Committee
Sunday, May 5, 2002

8:00am – 10:00am
Topic Symposium
5001 Measuring and Improving Quality in Academic Medical Centers
Chair: Michael Apkon, Yale University School of Medicine, New Haven, CT
Applying scientific approaches to quality management presents an important leadership challenge for Academic Medical Centers to enhance health care delivery. This symposium will review new paradigms with which to examine opportunities for measuring and improving the process of care delivery. The symposium will also consider areas of congruence as well as areas of opposition between the educational and care-delivery missions of Academic Medical Centers where often-competing interests of research, clinical care, and education create a particularly challenging environment for quality management.

1:45pm – 2:30pm
State of the Art Plenary
5590 Children as Victims of Bioterrorism: Protecting the Fragile Host
Chairs: Phyllis Dennery, Stanford University School of Medicine, Palo Alto, CA and Tina Lee Cheng, Johns Hopkins University School of Medicine, Baltimore, MD
With the recent world events and new threats of biowarfare, what should pediatricians know? Due to their size and physiology, children are at higher risk of injury from bioterrorism. This session will address the biology, clinical manifestations, and possible preventive strategies for likely biowarfare agents. The unique vulnerability of the child will be addressed.

2:00pm – 4:00pm
State of the Art Plenary
5701 Children as Research Subjects: Ethical and Regulatory Issues
Chair: Myron Genel, Yale University School of Medicine, New Haven, CT
A number of highly publicized adverse events, including the death of two volunteers participating in non-therapeutic research, and the federal shutdown of research at many well-recognized academic institutions because of inadequate compliance with regulatory requirements have intensified scrutiny of the protection afforded to human subjects participating in research, including children. Furthermore a Maryland court has recently decreed that children cannot participate in research without the potential for direct benefit. As a consequence there has been increasing media attention and Congressional concern regarding the adequacy of institutional oversight and investigator attentiveness to established standards and regulations. In addition, new regulations issued under the Health Insurance Portability and Accountability Act of l996(HIPAA) threaten the capacity to conduct health services and outcomes research. These issues will be addressed in the 9th annual Public Policy Plenary Symposium in an interactive format intended to stimulate dialogue among the members of the panel and with the audience.

2:00pm – 5:00pm
Workshop
5609 Using Systematic Review Evidence To Inform Clinical Decision Making in Children
The Cochrane Child Health Field facilitates the identification, organization, dissemination and utilization of up-to-date synthesized research evidence about effective care for children. The overall aim of child-focused systematic reviews of effectiveness should be to improve the quality of health care, and ultimately health outcomes for children. This is likely to be achieved only if relevant research findings are accessed, interpreted and appropriately incorporated into practice by health care providers.

4:15pm – 6:15pm
Platform Session
5901 Brain Imaging
Chair: William D. Gaillard

4:15pm – 6:15pm
Poster Symposium
5906 Neonatal Epidemiology and Follow-Up
Chairs: Mark A. Klebanoff and Saroj Saigal

8:00am – 10:00am
Platform Session
6059 Underserved Populations I
Chairs: Carrie L. Byington and Charles Feild

9:00am – 12:00pm
Workshop
6111 Qualitative Research in Pediatrics
Qualitative research has steadily acquired greater popularity and respect in medical and health services research over the past two decades. Increasingly, this set of methods is viewed as complementary to traditional quantitative research approaches. Qualitative research techniques represent a diverse set of research methods featuring the collection and analysis of narrative data to capture a subject’s unfiltered view of a situation or topic. Qualitative methods hold particular promise in certain research activities such as medical education, ethics, quality of care, cultural perspectives, survey research and patient–doctor communication.

9:00am – 12:00pm
Special Interest Group
6113 Health Services Research
Chair: Lawrence Kleinman, lawrence.kleinman@lvh.com

10:15am – 12:15pm
Platform Session
6204 Underserved Populations II
Chairs: Paul L. McCarthy and Ronald C. Samuels

12:00pm – 1:00pm
Alliance Club
6310A Bioethics Interest Group
Chair: Susan Albersheim
Is It Quality Improvement OR Is It Research?
Henry L. Halliday, Belfast, Ireland
Jon E. Tyson, Houston, TX
Barbara McGillivray

2:45pm – 4:45pm
Platform Session
6552 Clinical Bioethics
Chairs: Susan Hintz and Jon E. Tyson

8:00am – 10:00am
Platform Session
7055 Health Services Research: The Practice and the Patient
Chairs: Paul M. Darden II and Modena Wilson

8:00am – 10:00am
Poster Symposium
7058 Modeling To Detect Bioterrorism and Other Threats to Public Health
Chairs: Stephen M. Downs and Sarah S. Long

8:00am – 10:00am
Platform Session
7061 Underserved Populations III
Chairs: Jay H. Mayefsky and John I. Takayama

8:45am – 11:45am
Mini Course
7090 Controlling Asthma in the New Millennium
Chair: James S. Seidel, Harbor-UCLA Medical Center, UCLA School of Medicine, Torrance, CA
Although we have an understanding of the pathophysiology and treatment of asthma, the incidence, severity, and mortality from the disease is increasing. Twice in the past 10 years the National Heart Lung and Blood Institute has issued Guidelines for Diagnosis and Management of Asthma. These have not been widely adopted nor used. This mini course will explore the management of asthma in the emergency department and office setting and explore new methods to form care partnerships between practitioners, families and children to improve the care of asthma.

8:45am – 11:45am
Workshop
7106 Quality Improvement Research—A How To Session
Quality improvement activities are intended to close the gap between desired evidence-based structures and processes of health care and what is actually delivered. The Agency for Healthcare Research and Quality (AHRQ) continues to encourage and support rigorous research so that quality improvement efforts can themselves be evidence-based. In this workshop, AHRQ awardees will explain how they successfully applied for grants for quality improvement research, and how they are conducting quality improvement research in real world settings. The grantees will discuss the theoretical and conceptual QI frameworks that informed their approaches, the interventions they designed and implemented, the tools they used and developed, the practicalities of collaborations with health systems and the barriers and opportunities they encountered, including IRB issues. The workshop will include substantial opportunities to address participants' questions about individual research projects and the overall QI theme.
D. M. Dougherty and M. Miller (co-chairs), Agency for Healthcare Research and Quality, Rockville, MD; Charles Irwin, MD, University of California-San Francisco; MaryAnn Shafer, MD, University of California-San Francisco, and two other awardees of AHRQ quality improvement grants.

8:45am – 11:45am
Special Interest Group
7114 Race in Medicine
This year's meeting will be the first gathering of the Race in Medicine SIG. Our SIG is being formed to address three areas related to race:

1:45pm – 3:45pm
Hot Topic
7700 Models for Building Mental Health Capacity in Pediatric Primary Care
Chair: Anne M. Gadomski, The Mary Imogene Bassett Research Institute, Cooperstown, NY
This session will describe three models presently under study for building the capacity of pediatric primary care sites to manage children’s mental health problems. Two models are based on enhancements or extra resources for primary care providers, and the third is based on primary providers' skills.

1:45pm – 3:45pm
Hot Topic
7702 Disaster Preparedness: Beyond 9/11
Chairs: Tina L. Cheng, Johns Hopkins University School of Medicine, Baltimore, MD; Danelle Laraque, Mount Sinai School of Medicine, New York, NY; and Benard Dreyer, New York, NY
The impact of 9/11 and the public health aftermath have affected us personally and professionally. This session will address what the child health professional needs to know regarding disaster planning and preparedness. Speakers will review and provide updates on national and regional systems for emergency management and how those systems interact with local public health agencies, the pediatrician's role in the community's preparedness including what the school system, the pediatric office and the patient should be doing to prepare and respond, recognition and management of chemical and biologic agents of terrorism, and the psychological reactions to disaster and stress.

1:45pm – 3:45pm
Platform Session
7803 Health Services Research
Chairs: Denise M. Dougherty and Thomas B. Newman

1:45pm – 3:45pm
Platform Session
7805 Underserved Populations IV
Chairs: Thomas G. DeWitt and Victoria Meguid